Wednesday, June 11, 2014
Percussion Ensemble by Joy Caldwell
So I went to my daughter Jessica's "percussion ensemble" performance at her High School band concert tonight... It was very sweet and I loved seeing Jessica's beautiful smiling face on the stage with her peers (some with similar needs, others who were there to support them). (Jessica has Down syndrome, cerebral palsy, and autism). She and her classmates seemed to really enjoy "performing" their music for us! And they did a great job!
BUT... maybe it's just me... but it left me with a bittersweet taste in my mouth. Here's why. We were at a HIGH SCHOOL CONCERT with TEENAGERS! but the 3 songs that the "special ed percussion ensemble" played were: "Mary Had a Little Lamb", "Twinkle, Twinkle Little Star" and "Down at the Station" - all 3 PRESCHOOL songs! Does anyone else see a problem with this or am I the only one?!
Please don't misunderstand. I honestly don't think that the teacher or any of the other staff thought twice about it and they were all patting themselves on the back for the wonderful way that they "included" our kids with special needs in their concert - having them open it up.
I know that their motives were right but the thing that bothers me the most is that they didn't really realize the message that they were sending everyone there (including the teen percussionists). "It's okay to treat TEENAGERS with disabilities like pre-schoolers because of their disabilities..." Am I just being hyper-sensitive or does anyone else hear the message of "condescension" in this? After all, they seemed to enjoy it!
Personally, I find this disrespectful. My daughter is FIFTEEN years old now - she's not FIVE anymore. In fact, we are working very hard for her to learn how to act like a young lady - like a FIFTEEN year old - NOT A FIVE year old!! Truth be told, Jessica especially enjoyed the faster, more upbeat toe-tapping music that succeeded their toddler-esque performance and I really truly believe that our kids would be much better served by truly being included [even if playing smaller bit parts in the "regular" bands] than being made to look like preschoolers with the bodies of teenagers. Jessica and some of her peers may have some significant differences but she/they have FIFTEEN + years of life experience and deserve to be respected as such. What do you think?
Monday, June 9, 2014
More Diversity, Please...
When Archie Comics recently announced the addition of a character who uses a wheelchair, it also revealed a genuine need for more stories (books, comics, tv, movies) that reflect the diversity of real life. It not only reminds the broader community of the value of individuals with disabilities, it's a powerful affirmation of worth for the individual to see herself or himself depicted in stories that everybody shares and talks about.
Being excluded from the media is not unique to the disability community. The We Need Diverse Books campaign is focused on persons of color; however, it's a push that ought to also include persons with disability.
There are some very good books for middle grade and young adult readers that do a fine job of depicting individuals with disabilities or other differences that change the way people view them (and they view themselves). Whether or not your child reads, everyone can be read to (or with).
Here's a list of a few that are well worth adding to you and your child's summer reading list:
Alchemy and Meggy Swann
by Karen Cushman
Ages: Middle Gradeby Karen Cushman
From the Children’s Literature Network: Meggy's mother was glad to be rid of her; her father, who sent for her, doesn't want her after all. Meggy is appalled by London, dirty and noisy, full of rogues and thieves, and difficult to get around in—not that getting around is ever easy for someone who walks with the help of two sticks. Just as her alchemist father pursues his Great Work of transforming base metal into gold, Meggy finds herself pursuing her own transformation.
Mockingbird
by Katherine Erskine
Ages: Middle Grade
From the publisher: Caitlin is a bright fifth grader and a gifted artist. She also has Asperger's syndrome, and lives in a world of her own. Her brother, Devon, was the one who always helped her get by. But a middle-school shooting took his life. Now she has only her widowed father to rely on, and he has problems — and grief — of his own. Can a wise school counselor help Caitlin reach out to a world she's never understood? With Devon gone, will she have the courage to live fully on her own.
by Katherine Erskine
Ages: Middle Grade
From the publisher: Caitlin is a bright fifth grader and a gifted artist. She also has Asperger's syndrome, and lives in a world of her own. Her brother, Devon, was the one who always helped her get by. But a middle-school shooting took his life. Now she has only her widowed father to rely on, and he has problems — and grief — of his own. Can a wise school counselor help Caitlin reach out to a world she's never understood? With Devon gone, will she have the courage to live fully on her own.
From the publisher: Twelve-year-old Catherine just wants a normal life. Which is near impossible when you have a brother with autism and a family that revolves around his disability. She's spent years trying to teach David the rules — from "a peach is not a funny-looking apple" to "keep your pants on in public" — in order to stop his embarrassing behaviors. But the summer Catherine meets Jason, a paraplegic boy, and Kristi, the next-door friend she's always wished for, it's her own shocking behavior that turns everything upside down and forces her to ask: What is normal?
Wonder
by A.J. Palacio
Ages: Middle Grade
From the publisher: August (Auggie) Pullman was born with a facial deformity that prevented him from going to a mainstream school—until now. He's about to start 5th grade at Beecher Prep, and if you've ever been the new kid then you know how hard that can be. The thing is Auggie's just an ordinary kid, with an extraordinary face. But can he convince his new classmates that he's just like them, despite appearances?
by A.J. Palacio
Ages: Middle Grade
From the publisher: August (Auggie) Pullman was born with a facial deformity that prevented him from going to a mainstream school—until now. He's about to start 5th grade at Beecher Prep, and if you've ever been the new kid then you know how hard that can be. The thing is Auggie's just an ordinary kid, with an extraordinary face. But can he convince his new classmates that he's just like them, despite appearances?
Marcello in
the Real World
by Francisco Stork
Ages: Young Adult
From the publisher: Marcelo Sandoval hears music that nobody else can hear — part of an autism-like condition that no doctor has been able to identify. But his father has never fully believed in the music or Marcelo's differences, and he challenges Marcelo to work in the mailroom of his law firm for the summer . . . to join "the real world." There, Marcelo meets Jasmine, his beautiful and surprising coworker, and Wendell, the son of another partner in the firm. He learns about competition and jealousy, anger and desire. But it's a picture he finds in a file — a picture of a girl with half a face — that truly connects him with the real world: its suffering, its injustice, and what he can do to fight.
by Francisco Stork
Ages: Young Adult
From the publisher: Marcelo Sandoval hears music that nobody else can hear — part of an autism-like condition that no doctor has been able to identify. But his father has never fully believed in the music or Marcelo's differences, and he challenges Marcelo to work in the mailroom of his law firm for the summer . . . to join "the real world." There, Marcelo meets Jasmine, his beautiful and surprising coworker, and Wendell, the son of another partner in the firm. He learns about competition and jealousy, anger and desire. But it's a picture he finds in a file — a picture of a girl with half a face — that truly connects him with the real world: its suffering, its injustice, and what he can do to fight.
For more books that reflect the lives of children with disabilities, visit the American Library Association Schneider Family Book Award for past winners.
Saturday, June 7, 2014
New Parent Advice
What advice would you give parents on the day their child is diagnosed with a developmental disabity. Be sure to have tissues handy when you watch this!
Wednesday, June 4, 2014
Putting an End to Restraints and Seclusion
Recently,
the Bellevue School Board met to vote on a plan regarding the use of
restraint and seclusion techniques (read the Q13 report here).
While the plan might have addressed the legislature's requirement to
have a policy, it fell far short in addressing the very real concerns of
parents whose children have I/DD and who have been forced into
isolation rooms due to behavioral issues.
Parents who spoke up against the plan managed to table its vote...for now, but it's a battle that has shown few signs of subsiding.
According to the national campaign to Stop Hurting Kids:
The Call-In Day is June 12th. For more information, visit the Stop Hurting Kids action alert.
Parents who spoke up against the plan managed to table its vote...for now, but it's a battle that has shown few signs of subsiding.
According to the national campaign to Stop Hurting Kids:
Restraint and Seclusion are practices used in public schools that have killed, injured, and traumatized students. More than 20 children have died, according to a Congressional agency report. At least 107,000 students were subjected to restraint and seclusion in isolation rooms, according to data from the 2011-12 school year.The campaign has established a National Call-In Day to members of Congress, asking them to co-sponsor the KEEPING ALL STUDENTS SAFE ACT, which seeks to prevent dangerous restraint and seclusion.
The Call-In Day is June 12th. For more information, visit the Stop Hurting Kids action alert.
Sunday, June 1, 2014
A Different Kind of Love Story by Devra Hunt
He loves this dog. And this dog protects and understands him. In our home, it's the little things. We knew one day he would not just hold the leash, but hold the leash and walk with the dog. That day was yesterday.
Wednesday, May 28, 2014
Dignity and Rights for All
Washington State advocates are taking the lead once again. After meeting with Washington State Allies in Advocacy, U.S. Representative Derek Kilmer entered the Proclamation for the Dignity and Rights for all Human Beings into the Congressional Record.
In his address to the Speaker, Rep. Kilmer states:
"I was pleased to meet with individuals from my region and the Washington State Developmental Disabilities Council about important issues concerning people with developmental disabilities.I support their advocacy effort for people with developmental disabilities and programs that support them. The Washington State Allies in Advocacy has issued a Proclamation for the Dignity and Rights for all Human Beings and I am honored to submit a copy."
As the saying goes, Change is made by those who show up. Hats off to this group of committed advocates for showing up and being counted.
To view the proclamation, visit the Allies in Advocacy Proclamation page.
To add your name, or your organization's name, to the list of signatures, click here.
Monday, May 26, 2014
Does He Ever Get Tired?
Nate is definitely putting the "long" in "long weekend"! Is it bedtime yet? Hope you all had a nice Memorial Day!
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